So, I thought I would take a moment to tell you about what I do here. Maybe you are like most patients who figure out, often before they are diagnosed, that some foods trigger their symptoms. (Me? I kept saying, “I think my bladder is allergic to tomato sauce!”) To add to the collective chaos of the IC community, this "bad food list" often varies person to person.
Now, in dietitian language, we know this type of food intolerance shows up in a variety of health conditions and we use an elimination diet to help walk patients through the process of figuring out their own personal trigger foods. With IC, of course, we don’t have to start with plain chicken and green beans because we know there is a core group of foods that affect most IC patients―the "top ten trigger foods.” Keep in mind, interstitial cystitis is not taught in dietetics and nutrition programs, so in the beginning, I had to figure things out for myself too. And, after feeling like I would never be out of pain or get my life back, I gradually felt better.
Then patients and leaders in the IC community begged me, literally begged me to "write the book" about IC and diet. So I dug in, way past my comfort zone, took some self-publishing classes, and with the guidance and discipline developed writing about IC/painful bladder syndrome in graduate school, I eventually came up with Customizing the Interstitial Cystitis Diet: A Confident Choices® Book and Confident Choices®: A Cookbook for IC and OAB. These books are the foundation of my business. For most patients, I think these books are all you need to get motivated to adapt your diet to your condition. For those who need more help (such as people with multiple health conditions that require dietary intervention) I do phone and video consultations.
Eventually, in a spark of inspiration, I developed the tag line―the mantra and mission statement for my work with interstitial cystitis patients. “Hope, Health, and Healing” became my guiding principle as I expanded my work into more books and social media. It was important to me to tell you and others that it isn’t hopeless. You can be healthy. And I believe healing is possible.
Finally, I ask those of you who have worked with me to share your stories in the comments either here on or Facebook. Let’s help these new IC brothers and sisters of ours get through these horrible first days by sharing our wisdom and encouragement. Share your success stories. Let’s show them that they are not alone!
Author, Speaker, Patient Advocate
You CAN Feel Better! Just Take It a Step at a Time
For step by step guidance for creating your own personal interstitial cystitis meal plan, see: ConfidentChoices®: Customizing the Interstitial Cystitis Diet.
For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®:A Cookbook for Interstitial Cystitis and Overactive Bladder
For health care workers: InterstitialCystitis: A Guide for Nutrition Educators