tag:blogger.com,1999:blog-8639585305009174495.post5566494545223084052..comments2024-03-12T08:16:34.206-07:00Comments on Interstitial Cystitis Diet: Confident Choices®: Clearing the Clutter of Bad IC Diet Information by Spreading GOOD IC Diet InformationJulie Bhttp://www.blogger.com/profile/08464347473234144019noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8639585305009174495.post-81295887145770093682023-01-13T21:31:28.061-08:002023-01-13T21:31:28.061-08:00I have IC , I’ve noticed that stress can trigger m...I have IC , I’ve noticed that stress can trigger my IC to flare up plus .I have IBS so they kinda Mimic each other , I drinks lots of water take Marshmallow root , fiber in a powder form and do a Castro oil pack ( Therapeutic Technique)which helps w/ pain as well tremendously ! I put that on for 4 -5 nights a week . I also keep a journal of my flare ups and noticed they come at the same time yearly ,right before the holidays start to come @ the end of the year. My urologist is a Female and she’s the Best Dr. She has prescribed me HYOSCYAMINE SULFATE 0.125mg & MYRBETRIQ 25mg . So far those’s have worked for me . I understand everyone is different when going through theses flare ups so eating the right stuff might work for some of y’all but then it might not work for others . Am Lucky my flares ups have been coming once a year . Another thing stay away or cut down on caffeine that makes my pain worse . Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-4855096599765516892013-02-27T14:53:50.641-08:002013-02-27T14:53:50.641-08:00We try hard on the ICN forums to watch what people...We try hard on the ICN forums to watch what people say. There are many moderators who delete posts on a daily basis. It is Facebook and other social media that become problematic. If the "owner" of the pages don't know good from bad themselves, bad information can spread like wildfire. We all have a responsibility to say things carefully and not spread bad information even unintentionally. It is hard, to be sure. Hugs........JulieJulie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-9669680482769242642013-02-27T14:41:43.423-08:002013-02-27T14:41:43.423-08:00Julie, I totally agree! It's very frustrating...Julie, I totally agree! It's very frustrating to see people with their own agendas promoting poor advice on IC treatments, as well as diets. I just wish there were some way to have such advice automatically marked as bogus.<br /><br />DonnaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-41282093186867373682013-02-27T13:41:06.264-08:002013-02-27T13:41:06.264-08:00Having IC is difficult enough but then getting the...Having IC is difficult enough but then getting the wrong info saying it is the "miracle cure" for IC is awful. I have found the IC diet the way to go. Yes, I am very careful of what I put in my mouth, for I also developed vulvodynia. Not all IC patients develop this, but I did. I had a one on one with Julie Beyer at the beginning of my journey with IC. I use the diet. However, I have to say that what might be safe for you, may not be safe for me. So, I experiment. I also speak to a few women who I met on the IC network.... but I do it privately. Some posts on the network are very depressing. People say they follow the diet, but they you learn that they drink coffee, or soda! YUP!... of course pain will show its face. My advice is simple. IC diet, Learn proper stretches for the pelvic floor... (go to PT) Get a great urologist. Speak to positive people. AND Don't buy any books that say... Here is the CURE....for if this were true. ALL IC'ERS /and doctors would know it!... Hang in there. Spread the WORD!... Warmly, carolcairhttps://www.blogger.com/profile/05674478372128564430noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-74757279675408963282013-02-27T12:11:40.965-08:002013-02-27T12:11:40.965-08:00I do know how frustrating it was when I was first ...I do know how frustrating it was when I was first diagnosed and trying so hard to find the right things to eat. I thought I had it figured out, then I was diagnosed with gastroparesis, which has its own diet and eliminated the few foods I could eat. Now I live on cereal, toast, vanilla pudding, mashed potatoes...at least it's a little more IC friendly! Still frustrated...Carolynhttps://www.blogger.com/profile/16276598913041251101noreply@blogger.com