tag:blogger.com,1999:blog-8639585305009174495.post6142989279906625167..comments2024-03-12T08:16:34.206-07:00Comments on Interstitial Cystitis Diet: Confident Choices®: Gluten-Free Diet for Interstitial Cystitis/Painful Bladder SyndromeJulie Bhttp://www.blogger.com/profile/08464347473234144019noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-8639585305009174495.post-17575299210416889352018-08-21T16:07:15.401-07:002018-08-21T16:07:15.401-07:00Has anyone noticed improvements with regards to Bl...Has anyone noticed improvements with regards to Bladder Pain Syndrome and the exclusion of Gluten in their diet? My BPS is out of control and haven't been able to pinpoint it to any certain foods. thinking of excluding gluten...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-67913964402558514462017-01-04T09:45:13.534-08:002017-01-04T09:45:13.534-08:00Hi! Please email me at NutraConsults@aol.com and w...Hi! Please email me at NutraConsults@aol.com and we can set up an appointment to talk!Julie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-38005183462493773252016-12-13T13:05:17.696-08:002016-12-13T13:05:17.696-08:00Hi Julie I have a question for you. I was diagnose...Hi Julie I have a question for you. I was diagnosed with IC about three to four years ago and I just recently found I may have sensitivity to Gluten as well. Is there a meal plan I can get ideas from? I mean If you look over both lists of what to aoid they kind of cancel one another out.....Not sure what to eat to....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-71090455736494212742013-04-08T15:49:47.813-07:002013-04-08T15:49:47.813-07:00I appreciate that you shared your experience! I be...I appreciate that you shared your experience! I believe there is a segment of the population with bladder symptoms that is gluten sensitive. To me it goes back to the question, "What is IC?" This is a question that doesn't have a complete answer as of this writing. In fact other diseases like fibromyalgia, multiple sclerosis, and mastocytosis have bladder complications just like some people with gluten allergies/sensitivities. So, are bladder problems simply symptoms of other diseases and that is why we have so many different presentations and treatments? Or is IC a disease to itself and other people have "IC-like" symptoms but they don't really have IC? <br /><br />As I like to say, "Stay tuned as we learn more!"Julie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-63215005307292054122013-04-08T13:18:24.830-07:002013-04-08T13:18:24.830-07:00Hi Julie, I was diagnosed with IC 4 years ago. My...Hi Julie, I was diagnosed with IC 4 years ago. My IC causes tiny ulcers to form in my bladder, and I would consistenly find blood in my urine along with the pain and urgency. The urologist who diagnosed my IC prescribed Atarax to help me sleep during flare ups. During my 30 days of Atarax, all of my stomach pain and heartburn went away along with most of the bladder pain. It is my understanding that Atrax is a very strong antihistamine which got me thinking....maybe a food allergy is triggering these symptoms. Turns out the culprit for me was gluten. As long as I completely eliminate gluten from my diet, the IC remains under control. Times that I have "cheated", within 6 hours I am guaranteed that the bladder pain/pressure will return. The really weird thing is that none of the other typical trigger foods seem to bother me. I can eat chocolate, tomatoes, spicy foods, coffee, and orange juice with no problems. One whole wheat bagel, however, will have me screaming in the bathroom urinating "pink". Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-5434377939096488272012-08-15T20:41:34.732-07:002012-08-15T20:41:34.732-07:00Thank you for sharing your experience, Heather. I ...Thank you for sharing your experience, Heather. I think this is definitely something we need more research on!Julie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-29652369732378378162012-08-15T19:38:41.443-07:002012-08-15T19:38:41.443-07:00I went gluten-free last October, but also started ...I went gluten-free last October, but also started taking a few new recommended supplements around the same time. I had less pain, but was never sure what was making me feel better. This summer I had to stop being gluten-free, due to a lot of traveling where I had no control over my food choices (i.e., being on a 6 acre island in Lake Erie for a few weeks). I had a major increase in pain during this time, but was also eat heavily processed, sodium-laden, and not-IC-diet-approved foods. <br /><br />Once I got home and started following the IC diet again, I felt much better, and have continued to eat foods containing wheat without trouble. I feel that eating fresh, minimally processed food is more important for my symptom management than avoiding wheat products. Heather Millerhttps://www.blogger.com/profile/16381274157790534233noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-18706969854528256062012-06-29T12:25:23.693-07:002012-06-29T12:25:23.693-07:00I am glad to hear your experience. I absolutely be...I am glad to hear your experience. I absolutely believe that each IC patient needs to listen to his or her own body and do what is best for them. Like anything else with this crazy disease, somethings will help some people and not others. I am glad you have gotten relief. Would you mind emailing me? I would like to talk to you more about this: NutraConsults@aol.com. Thanks!Julie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-41732796366471806882012-06-29T11:23:27.881-07:002012-06-29T11:23:27.881-07:00Eating gluten free is not difficult and totally wo...Eating gluten free is not difficult and totally worth it (if it helps the individual). I began eating gluten free at the advise of a personal trainer and have been GF for over one year. It has been life changing. My IC symptoms have lessened considerably, I no longer have extreme bloating and I find myself without joint pain.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-326576170560937372012-04-16T06:58:56.497-07:002012-04-16T06:58:56.497-07:00I am currently trying the no gluten no wheat diet....I am currently trying the no gluten no wheat diet. It has been costly. It has been 2 weeks, but I had a day where a family meal meant I had wheat, and boy did I enjoy it! I feel a bit better, but still have burning and frequency, I just don't know ... I want to cut out dairy too, I think I need to get in touch with a nutritional expert if I am to continue.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-78731839039028747532012-04-15T17:42:39.424-07:002012-04-15T17:42:39.424-07:00I went on an elimination diet for about 2 months. ...I went on an elimination diet for about 2 months. I am glad I didn't find that I was sensitive to gluten, instead it was the typical IC culprits: coffee, soy and citrus, as well as tahini, which was a surprise. I think following a diet that is low in sugar is also really helpful for reducing flares. I highly recommend trying an elimination diet to identify your own personal triggers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-44804494078461063872012-04-14T20:59:23.296-07:002012-04-14T20:59:23.296-07:00Yes I have tried a gluten free diet. I have only u...Yes I have tried a gluten free diet. I have only urgency and frequency IC symptoms at this time. I am about 70% raw and vegan. So by going vegan and raw I found that all my IC symptoms were eliminated except for the urgency and frequency of urination. So I thought let me eliminate gluten, why not give it a try. Now I must admit I did not go as far as wearing gluten free make-up. Unfortunately going gluten free did not help me with my urination frustration but I found that I was continuing to feel better and I thought that vegan and raw<br />had given that back to me. I did not realize I could feel even better without eating gluten. It is my belief, now, that my main problem is digestion. I have trouble digesting food. Therefore eliminating gluten help speed up my digestion even more. I had one tiny slice of cornbread the other day at my friends house and no problems. However, it is rare that I eat any bread, crackers and desserts. Perhaps I have a sensitivity to gluten but my gut tells me that I must stick to the vegan/gluten-free for a year or two more and let my body detox. I have been vegan for just over a year, raw more and more but started trying to consume more raw foods 6 months ago, and gluten free most weeks for 4.5 months. I live without many foods, that I miss, but the one thing that I live without is pain...it is all worth it for that. :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-60036403180076664912012-04-14T19:32:53.859-07:002012-04-14T19:32:53.859-07:00Thank you for sharing your personal story, Carolyn...Thank you for sharing your personal story, Carolyn. I just hate to see IC patients take more out of their diet than they actually have to. I wasn't joking about the Cream of Wheat. I really find it soothing when I am not well.Julie Bhttps://www.blogger.com/profile/08464347473234144019noreply@blogger.comtag:blogger.com,1999:blog-8639585305009174495.post-35555774725989136672012-04-14T18:32:39.098-07:002012-04-14T18:32:39.098-07:00I did try a gluten-free diet last summer. My daug...I did try a gluten-free diet last summer. My daughter was diagnosed with celiac disease, so we both ate gluten free from the time she was diagnosed until she returned to college. For her, obviously, the diet was wonderful. She started gaining weight and finally felt good and had energy for the first time in years. I did lose a few pounds and felt better. But, as you said, when my IC flared I couldn't stay with it. I needed bland foods...especially cereals and breads and the GF versions of them just weren't the same. She has been on her GF diet for close to a year now and is doing great, looks good and basically is a new person. When she comes home next month for the summer I'll probably cut down on the breads, etc., just so they won't be around the house, tempting her.Carolynhttps://www.blogger.com/profile/16276598913041251101noreply@blogger.com