Actually, I wasn't writing a blog post initially, but was writing a new program for dietitians about the emotional impact of chronic disease, and I thought about my personal philosophy and how HOPE is critical to healing...and then I thought about how hope and spring go together.....and well, you could say that this blog post for YOU is me procrastinating about what I should be doing today. But it isn't. Because it is always about you.
You see, hope has always been central to what I do for interstitial cystitis painful bladder patients. I have been a member of the IC Network's Support Group Forum since I was diagnosed with IC in 1998. The owner, Jill Osborne, has since become a great friend, and I have been a forum "Leader" almost from the beginning. I always say that the people I communicated with over the years really saved my life when I was in the most pain and was discouraged.
It was at the ICN that I learned that HOPE is THE most important component to treating a chronic disease. Once you have hope, you can begin to look for solutions. Once you have hope, you have more energy. Once you have hope, you are opening your mind to the possibility that one day you can get better. Hope isn't magic, but it removes the paralyzing emotions of fear, discouragement, defeat, frustration, and anger.
Of course, hope only works when it is internalized by the patients but others can influence the level of hope within a patient with chronic illness. We have all probably had an encounter with less than compassionate medical providers. We have all probably had conversations with family members and friends where they made it clear that they don't understand what you are going through. We all probably cheer when we see those mini-posters on Facebook that exclaim some version of, "Until you walk a mile in my shoes, don't judge."
But what I want you to focus on today are the people who DO understand. Search out hope where hope is nurtured. Find medical providers who truly love to treat interstitial cystitis patients. Help other patients when they are down and you will find they will reciprocate when you need encouragement. Read hopeful posts from people on ICN and Facebook, and don't feel bad about walking away from chronically negative people. Watch funny movies and read uplifting books.
What do you do to nurture hope? How do you keep going when life throws you curve balls? What do you do to encourage others with chronic illness?
FOR MORE INFORMATION ABOUT EMOTIONAL CONSEQUENCES OF CHRONIC DISEASE SEE:
Emotional Support Animals for People with Chronic Illnesses
Interstitial Cystitis: Staying Active
Interstitial Cystitis: Can Stress Affect an IC Bladder?
Interstitial Cystitis Mental Gymnastics: Part One (Intention)
Interstitial Cystitis Mental Gymnastics: Part Two (Turning Negative to Positive)
Interstitial Cystitis: Head Outdoors for More than just Fresh Air
Emotional Support Animals for People with Chronic Illnesses
Interstitial Cystitis: Staying Active
Interstitial Cystitis: Can Stress Affect an IC Bladder?
Interstitial Cystitis Mental Gymnastics: Part One (Intention)
Interstitial Cystitis Mental Gymnastics: Part Two (Turning Negative to Positive)
Interstitial Cystitis: Head Outdoors for More than just Fresh Air
Author, Speaker, Patient Advocate
Helping Yourself Is the First Step to Getting Well
For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.
For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder
For health care workers: Interstitial Cystitis: A Guide for Nutrition Educators
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