We got to Ocala (about an hour from Disney), and I couldn't take it anymore. I HAD to go to the hospital. Ever the "good mommy" I made sure everyone was settled in a hotel with a pool BEFORE I drove myself to the hospital a few miles away. I was getting sicker by the minute and after the fact realized I had no business behind the wheel of the van.
When I got to the ER, they could tell I was in rough shape (more than I knew myself) and took me right back. I had a male NP who examined me. He listened to everything I had to say, actually was interested to learn something new, then took it upon himself to call the Interstitial Cystitis Association to find out more. In my condition, I didn't want anyone poking around "down there", but I have to say he gave me the gentlest pelvic exam I ever had. When my labs came back I was off the charts with a bladder infection. After twelve hours on an antibiotic I was feeling brand new and our vacation was not disrupted after that.
I couldn't believe that with everything I was experiencing I didn't recognize that I had an infection. I had hot foamy urine, I had a fever, I was nauseated, and as I said, almost mentally insane with the pain. I was trying to be as stoic as possible about it all, so as not to ruin anything for the family. But, if I had waited any longer, I could have ended up with a kidney infection or worse.
I think the most important lesson I can pass on to you is to see a physician as soon as you think something is wrong and different than your usual bladder symptoms. You can buy UTI test kits to use at home, but even if the test shows a bladder infection, you must see a doctor to be prescribed the correct antibiotic. Don't be shy; ask for a "culture and sensitivity" to be done on your urine sample to be SURE that you are getting a drug that will most efficiently fight the infection you have.
I do think it takes some time to relearn our body's signals, but it can be done. Although I still get urinary tract infections occasionally, more often than not I catch them before they get too bad.
Author, Speaker, Patient Advocate
For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.
For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder
For health care workers: Interstitial Cystitis: A Guide for Nutrition Educators
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