Monday, August 25, 2014

Three Thoughts About How Food Affects an Interstitial Cystitis Bladder

http://www.ic-network.com/patient-resources/bladder-photo-archive/
Picture courtesy of Interstitial Cystitis Network's
Bladder Photo and Video Archive.
People ask me if food can "cause" IC or if it can "hurt" an IC bladder. If I wanted to keep this post short, I could just say, "We don't know." But, I know you expect more from me than that. So here are some random thoughts from me on that perplexing and complicated issue.

Thought One: I think one of the problems is that when people with interstitial cystitis are feeling better, they really don't want researchers or physicians to poke around in their bladder just to see what it looks like. I know I honestly don't want to risk going "back" there. So, how do we determine if eliminating certain foods and drinks is actually helping heal a painful bladder, or if it is simply a comfort measure that helps control the symptoms? Does it matter if you feel better when you modify your diet?

Thought Two: I can eat a lot more foods now, and IC isn't the horrible monster that it was in the years right before and after I was diagnosed. I personally have the sense that my body has "healed," even though the doctors avoid using that term. On the other hand, If someone has interstitial cystitis, they are probably always going to be predisposed to bladder pain just like others get arthritis, stomach aches, or migraines. We see this everyday in people who were in remission one day and in a wicked flare the next.

Thought Three: As for how food and the body is reacting when you have IC, we truly don't know what the role is, and it is probably different for each type of food (and each person, if we are honest!) We DO know from research and from listening to IC patients that if a person eats or drinks something like coffee, that their symptoms of a "flare" might only last for 24 hours, or they may last for three weeks or longer. So the question is still there: What is the mechanism that causes pain and symptoms for several weeks after you drink that cup of coffee? There is obviously an effect...likely inflammation. Would medications like Elmiron work better if you were not constantly inflaming your bladder with coffee, tea, soda, etc?

The bottom line is you are still better to avoid these foods even if you are trying medications and instillations that are meant to help. Stop looking for excuses to "indulge" in that cup of coffee or diet soda. Make one small change at a time and "indulge" in the investment of the best health you can give yourself!

PS: If you are looking for a painless way to support our work, remember to make your purchases from Amazon.com through the links on this newsletter and on www.ic-diet.com.

Recent Amazon purchases that helped Confident Choices:

Interstitial Cystitis DVD: Healthy Body, Healthy Mind Series
Brita Sport Water Filter Bottle, Twin Pack
Desert Harvest Glucosamine & Chondroitin


Author, Speaker, Patient Advocate

Don't Wait Another Day. Take Control of Your IC Symptoms!

For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.

For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder



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Tuesday, August 19, 2014

Interstitial Cystitis Diet Teleconference, August 20, 2014 (recording available)

On  August 20, 2014, I did a FREE Nutrition Chat via teleconference with Dr. Penny Wilson about interstitial cystitis and diet. Dr. Penny interviewed me for the first part of the call, and there was over an hour at the end for questions and answers.

It was great to hear so many of your voices and even better that I could answer your questions one on one. 

For those of you who would like to listen again or for those who could not attend the live version, there is a recording available on my website. Please visit IC Diet Teleconference to listen in and please tell your friends and your IC support groups!

Author, Speaker, Patient Advocate

Helping Yourself Is the First Step to Getting Well

For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.

For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder



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Wednesday, August 13, 2014

Depression, Suicide, and Interstitial Cystitis

Robin Williams
If the death of Robin Williams teaches us anything, it is that depression can be insidious. It can simmer under the surface of a perfectly "happy" facade. It can be obscured by the veil of a busy, productive person's schedule. It is more than a blue day now and then. The darkness can be unimaginable to people who have never been there. When it strikes, there seems that nothing in the world can pull a person out of the depths. Physical pain can cause depression. Depression can cause physical pain. Addiction can cause depression. Depression can lead to addiction. Often we get mired in the chicken and egg discussion when what we need to do is just help the person.

If you are in suicide or depression crisis, please call: 1-800-273-TALK (8255). Don't wait. Call. Call for yourself. Call for someone else. Save a life.

You also might be interested in:

Interstitial Cystitis: Take Action to Defeat Depression
Interstitial Cystitis: Emotional Impact of Chronic Illness
Interstitial Cystitis Network: Understanding Depression


Author, Speaker, Patient Advocate

You CAN Take Control of Your Painful Bladder!

For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.

For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder



 **Please SHARE using the links below!**