A great example is the time my family was driving to Florida from Michigan, and we had to stop just short of our Disney destination for me to go to an emergency room. I thought I was in a horrible flare, but actually had a raging bladder infection. At the time, I felt guilty and "blamed" myself for our family "losing" a day of vacation. Let's step back, however, and digest this logically:
- First, whether it was an infection or an IC flare, it wasn't my fault. Period. Nothing I did made me sick. Nothing I did gave me IC.
- Second, my family did not really lose a day of vacation. While I was in the ER, they were back at the hotel swimming in a pool and having a great time. It wasn't the Mouse's pool, but it was a pool, and the weather was warmer than it had been in Michigan when we left. No one else perceived it as a problem, why did I?
- Third, if I hadn't gone to the ER, I would have become that much sicker. Delaying treatment is never better than seeking help.
- Finally, it could have been anyone else that had gotten sick....and they have on other vacations. My husband broke a foot right before we went to Mackinaw Island once. He even rode a horse on that trip. Then, he broke his hand in a car accident before we took a two week cruise. I was totally understanding and even bought him an electronic reader to take so he could read more comfortably. My middle child used to get sick with something nearly every time we traveled or took a vacation. On one trip, I spent the day in the hotel room with her while the rest of the family went to a water park. And, each of my kids have missed parts of vacations because of baseball tournaments and band camp.
Restroom Access Card" from the Interstitial Cystitis Network. The physician's assistant looked up information on IC and was able to help me much more effectively than if I had to explain everything from scratch. These cards can also be handy if you are on a plane or need restroom access in a place that generally doesn't have public restrooms. A bargain at $2.49 for 3.
Fighting Interstitial Cystitis Flares
IC Patients - Are You an Introvert or an Extrovert?
Mental Gymnastice Part One (Consider Intentions)
Mental Gymnastics Part Two (Turning Negatives to Positives)
Author, Speaker, Patient Advocate
Helping Yourself Is the First Step to Getting Well
For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.
For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder
For health care workers: Interstitial Cystitis: A Guide for Nutrition Educators
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