I am personally not convinced that going gluten free is necessary for all IC patients. With the thousands of IC patients I have worked with in the past 10+ years, I have not seen this to be an issue unless someone had a documented gluten sensitivity for some other reason.
That being said, if a person wants to try a gluten free diet for a week or two, I don't discourage them. I believe in the patient's intuition and wisdom of their own body. If it works, great...if it doesn't work after a week or two, it probably isn't going to work so it is better to focus on other things.
The bottom line is that going gluten free isn't going to replace getting rid of caffeine, sodas, alcohol, soy, citrus, chocolate, spicy foods, and tomatoes. Those are the documented foods that bother an IC bladder......not toast and Cream of Wheat which many IC patients actually find soothing when they cannot eat other foods.
One of the leading experts in this area is dietitian Shelley Case. Her book, Gluten-Free Diet is now in its fourth edition. If you would like to know her opinion on the matter, you can listen to a recent online interview here.
Have you tried to follow a gluten-free diet? If so what convinced you to try it? Did it help?
Author, Speaker, Patient Advocate
Helping Yourself Is the First Step to Getting Well
For step by step guidance for creating your own personal interstitial cystitis meal plan, see: Confident Choices®: Customizing the Interstitial Cystitis Diet.
For some basic, family-style, IC bladder-friendly recipes, see: Confident Choices®: A Cookbook for Interstitial Cystitis and Overactive Bladder
For health care workers: Interstitial Cystitis: A Guide for Nutrition Educators
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